Yvonne's Story

I was in constant pain for 3yrs before a professor of neurology diagnosed me with Fibromyalgia and ME. It was a horrible, long 3yrs I can tell you.

I was working away in my job in the chemist, I had two bouts of gastritis, and an episode of flu. Everything started happening after all that. Feeling extremely tired, my legs were bad, pain, pins and needles, numbness, and very weak. Using a wheelchair for distances as can't walk hardly at all anymore, use my stick indoors.

Nausea, headaches, temperature fluctuations, I have a huge lump on base of my neck which I had an MRI for, results were a lot of fatty tissue, but causes all sorts of sensations and painful, and the area is numb.

 

I also have an underactive thyroid, acid reflux, plantar fasciitis, in fact my professor of neurology said I have fasciitis all over my body. It has changed me completely, my life is so different now. I was always a very active person, enjoyed swimming, a good singer, was a member of two different operatic groups which I loved, I miss that more than anything. But I have accepted my new life now even though I am a changed person. It never gets easier, I wasn't on any meds, now I take the following:- thyroxine, lansoprezole, buscopan for irritable bowel, gabapentin, amitriptyline, and also statins, as I'm not active anymore so my cholesterol was high.

 

It's a horrible way to live, but I keep myself going by thinking there are people out there much worse off than me, and I know that's true. My husband is my carer, he is a Godsend. I also have a wee gorgeous grandson now at 2 months old, love him to bits! I also had to have steroid injections for a frozen shoulder and Tennis elbow, and just got rid of gastroenteritis, which was horrendous. I thought I was dying, went to hospital in ambulance it was so bad. I know I've lost quite a bit of weight having that which I'm not complaining about! I was always a size 8-10, weighing no more than 8 and half stone, put on so much with not doing my ballet and tap plus taking meds. It took me 3yrs to get diagnosed, I thought I was going crazy!!