Jackie's Story

I was diagnosed with fibromyalgia nearly 4 years ago and it all stemmed from a fall down the stairs. At first I thought the pain I was experiencing was due to the fall, then every day there was something else; the dizziness then palpatations, pain in my hips then my arms.

 

I became really worried I was up and down to my GP every day, my husband even phoned an ambulance for me one night as I thought I was having a heart attack, and as you can imagine at 30 with 6 kids I was absolutely terrified at the hospital. They checked me over, I was sobbing I was in so much pain but they couldn't find anything. Next day I went back to GP, it was an older man I saw who said 'I think it sounds like this', and gave me a leaflet and said; 'read over it and come back if you think I'm right'. I thought, wow that's everything I feel -tiredness, numbness in my face, pins and needles in my hand, all over pain, dizziness. I went back and he referred me to rheumatology who diagnosed me with fibromyalgia. I was lucky to be diagnosed fairly quickly, then it went downhill.

 

I was staying in Blackpool after the diagnosis, but we decided we had to be closer to family for support with the kids etc so moved home to Cumbernauld near Glasgow. It took me a few attempts to find a doctor willing to try and understand.

 

The first one told me to go to a gym, and that was after me practically crawling in one day in tears I was in so much pain. Now nearly four years on I'm still in a lot of pain, I use crutches around the house and a wheelchair if I go out I'm severely depressed and I have no confidence. I have weekly counselling sessions to try and help grieve for the life I had but I'm just not ready to do that. I feel such a burden and a failure to my husband and my children. I hardly move from my bed. I spend every day in my room as I don't see the point, and even when I do I'm too sore anyway.

 

Fibromyalgia is a horrible illness and affects everyone differently and I really believe there has to be more of an awareness raised about it.